In a recent ruling by the Delhi High Court, AIIMS and the State Government of Uttar Pradesh were involved in a case regarding the allocation of funds for patients with disabilities. The court directed the State Government to release Rs. 5 lakhs to AIIMS for the provision of necessary aids and equipment. This decision aims to improve healthcare access for individuals with rare diseases, allowing them to receive the support they need. #AIIMS #UttarPradesh #Disabilities #Healthcare
Facts
- State Government of Uttar Pradesh has released Rs. 5 lakhs to AIIMS for person with disabilities.
- Dr. Madhulika Kabra requested to examine and provide necessary aids and equipment, including a motorised wheelchair, to the Petitioner within ten days.
- Patients with rare diseases residing outside Delhi find it inconvenient to travel weekly for infusions.
- AIIMS has received the amount from the State Government.
- Dr. Kabra authorised to take necessary steps to facilitate the process for these patients.
- Efforts being made to explore options to dispatch medications directly to local hospitals or Centres of Excellence for infusion.
- M/s. Sarepta Therapeutics supplied medicines for 14 patients through AIIMS, New Delhi.
Decision
- A meeting was directed to be scheduled between NRDC and M/s. Sarepta Therapeutics
- The meeting was to be arranged at the convenience of committee members
- A proposal was made by NRDC regarding M/s. Sarepta Therapeutics
- The next date of hearing will be preceded by a status report in this regard
Case Title: ARJUN SHARMA THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH. SANJEEV SHARMA Vs. UNION OF INDIA & ANR. (2024:DHC:3871)
Case Number: W.P.(C)-8948/2023
