In a recent landmark judgement by the Delhi High Court, a case involving AIIMS and the Uttar Pradesh State Government regarding the supply of medication for rare disease patients has been resolved. The court’s decision aims to ensure timely access to necessary medication for those in need. Stay tuned for more details.
Facts
- Uttar Pradesh State Government released Rs. 5 lakhs to AIIMS for person with disabilities
- Dr. Madhulika Kabra requested to examine and provide necessary aids to the Petitioner within 10 days
- Patients with rare diseases outside Delhi find it inconvenient to travel weekly for infusions
- AIIMS received the amount from the State Government
- Dr. Kabra authorized to facilitate medication dispatch to local hospitals or clinics for patients
- M/s. Sarepta Therapeutics supplied medicines for the 14 patients through AIIMS, New Delhi.
- The supply of medicines was in compliance with the previous orders of the Court dated 26 February, 2024, and 22 March, 2024.
Decision
- Next meeting scheduled between NRDC and M/s. Sarepta Therapeutics as per committee members’ convenience
- Proposal made by NRDC to M/s. Sarepta Therapeutics on 9 May, 2024
- Status report to be filed before the next date of hearing
Case Title: MASTER PUSPENDER THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH. PAWAN KUMAR Vs. UNION OF INDIA & ANR. (2024:DHC:3871)
Case Number: W.P.(C)-7756/2023
