In a significant verdict, the Delhi High Court has intervened to facilitate assistance for patients with rare diseases. The judgement, aimed at improving medical support for individuals in need, emphasizes the importance of timely aid and equipment provision. This ruling will positively impact the lives of those seeking better healthcare facilities.
Facts
- Dr. Kabra is coordinating with the Medical Superintendent, AIIMS, and other officials to explore the dispatch of medications to local hospitals or clinics for infusion.
- Supply of medications is expected to run out by mid-July as per the Amicus.
- Uttar Pradesh Government has released Rs. 5 lakhs to AIIMS for persons with disabilities.
- Patients with rare diseases outside of Delhi find it inconvenient to travel every week for infusions.
- AIIMS has confirmed the receipt of the released amount.
- Dr. Kabra is requested to examine and provide necessary aids and equipment to the petitioner within ten days.
- Dr. Kabra has the authority to take any necessary steps to facilitate assistance for these patients.
- M/s. Sarepta Therapeutics supplied medicines for 14 patients through AIIMS, New Delhi.
Decision
- M/s. Sarepta Therapeutics to meet with NRDC as per committee’s convenience
- Next meeting scheduled to discuss proposal made by NRDC
- Status report to be filed before next date of hearing
Case Title: DIVYANSH KARNANI THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH. RAJESH KUMAR KARNANI Vs. UNION OF INDIA & ORS. (2024:DHC:3871)
Case Number: W.P.(C)-8947/2023
