In a groundbreaking decision, the Delhi High Court has ruled in favor of the State Government of Uttar Pradesh and AIIMS, ensuring the provision of aids and medications for patients with rare diseases. This judgment will have a positive impact on individuals facing health challenges, reaffirming the commitment to quality healthcare and support. Read on to learn more about this monumental legal victory.
Facts
- State Government of Uttar Pradesh has released Rs. 5 lakhs to AIIMS for persons with disabilities.
- Dr. Madhulika Kabra is requested to examine the Petitioner and provide any necessary aids and equipment, including a motorised wheelchair, within ten days.
- Patients with rare diseases residing outside of Delhi find it inconvenient to travel every week for infusions.
- AIIMS has received the amount from the State Government.
- Dr. Kabra is authorized to take necessary steps to facilitate the process for these patients, including exploring the possibility of dispatching medications directly to a local hospital or clinic for infusion.
- M/s. Sarepta Therapeutics supplied medicines for 14 patients through AIIMS, New Delhi.
Decision
- A meeting was directed to be scheduled between NRDC and M/s. Sarepta Therapeutics
- A proposal was made by the National Rare Diseases’ Committee regarding M/s. Sarepta Therapeutics
Case Title: LAKSHAY AGARWAL Vs. UNION OF INDIA & ANR. (2024:DHC:3871)
Case Number: W.P.(C)-8986/2023
